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Please feel welcome to join us in the celebration! We appreciate everyone who has followed Avery in this journey (reaching 3 years now!) so far. We feel like turning 3 is a big milestone. Avery starts special services developmental preschool later this month and we are looking forward to this new opportunity that will, along with us, continue to challenge her and push her to achieve her highest potential. This opportunity comes with a downfall though...it means that she has aged out of the First Steps early intervention program. This bring sadness because it means we will no longer see all the wonderful ladies that have been a part of Avery's First Steps therapy team...a group of ladies who have worked hard for Avery and who have championed and celebrated her every success and who have worried and fretted themselves through all her medical interventions and continued seizure activity. To be sure, these woman will all remain a part of our lives in some way, but to not see them every week will be such an adjustment. They have been so good for Avery and Mom too! We can't thank them enough for their work and their commitment to the jobs they do! Please don't be surprised if you see me shed a few tears through this transition. First Steps Ladies...if you are reading this...Jon and I thank from the very depths of our being for ALL you have given of yourselves to our precious Avery. Each of you have touched us in profound ways and made a huge impact on not only Avery's life, but our whole family's. Please accept our immeasurable gratitude! You ABSOLUTELY always have an open invitation to call...stop by...whatever! You have been and will continue to be a beautiful part of Avery's extended "family".
ALL: Please send me an email at holly1224@sbcglobal if you think you can help us celebrate on Saturday. We would love to have you!
The children (all have had hemispherectomies) and the Moms on Sunday, June 29th. 2 children/Mom combos missing that couldn't be there on Sunday too.
I promise...I will update in full soon! For now...just know...We had the most AMAZING time in Kansas meeting up with the other HME families we "know" through the Yahoo group. I can not put the experience into proper words...just know that we were hugely affected by this gathering and we CAN'T WAIT to see everyone again next summer! Check back soon for links to pictures (actually, go here for now hmegathering2008.snapfish.com/snapfish) and additional SPECIAL FRIENDS links. I know that there are so many people who struggle and no shortage of people to lift up in prayer, but I humbly ask you to keep each of these families in your prayers through the weeks and years to come. It is a long journey, though we all have risen to the challenge so far and are eager to continue rising to it in the many days to come (God willing)!
Love and Hugs,
Holly
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